A fundraising campaign has been launched in a bid to give Waterford's Noah O’Sullivan the ability to walk
A fundraising campaign has been launched in a bid to give a Waterford child the ability to walk independently.
Noah O’Sullivan was born at 29 weeks with various medical issues. At just 13 days old, he was transferred to Temple Street Children’s Hospital having suffered two brain bleeds, hydrocephalus and meningitis. He was diagnosed with spastic diplegia cerebral palsy at 18 months old, as a result of these early conditions.
The four-year-old has been approved for life-changing surgery in the United States, which will allow him to learn to walk and end his days and nights of painful muscle spasms.
Selective dorsal rhizotomy would significantly reduce the spasticity in Noah’s legs, giving him the chance to walk independently in all environments. It would also free up his body, allowing him better control of his movements and balance, and ending his days and nights of painful muscle spasms. The surgery is not available in Ireland
His parents David and Debbie O’Sullivan together with committed supporters have launched a fundraising initiative to raise the €100,000 required to make this little boy’s wish to walk become a reality.
More than €18,000 has been raised to date, which will help cover the cost of the surgery and the necessary post-operative physiotherapy.
David and Debbie say Noah is a “happy, funny little boy well known for his instant ear to ear smile”. They say: “Noah loves to explore and go on little adventures. He walks and runs with his kaye walker but is limited in what he can do.
“Cerebral palsy affects Noah in that he cannot stand or walk safely without support as his body is in a constant battle against him, forcing him into an extreme tip-toe position every time he tries to use his legs. He cannot sit freely or comfortably without a chair. He has poor balance and finds it difficult to transition from one position to another. All of these simple movements are a major challenge to Noah.
“Noah has attended physio since he was just four weeks old, long before he was even due to be born. He works through grueling physio sessions every single day and continues to improve all the time. He is a determined little boy who works so hard, but to achieve control over his movements and progress to the next level he needs surgery to eliminate the spasticity which dominates his body.”
The O'Sullivan family from Waterford
David and Debbie say that Noah would love the chance to run, jump and play with his little brother and friends. “This is that chance! This surgery will allow him so much more than the ability to walk – he will be able to stand, interact with his peers at their eye level, learn to become independent and most importantly live a life without the pain of muscle spasms.”